About Us

This website has been developed by leading patient associations, PHA Europe and PHA US, and was first launched with financial support from Actelion Pharmaceuticals, to provide information and a library of high quality resources developed by patient groups for anyone who has been diagnosed with Pulmonary Arterial Hypertension (PAH) as well as their families and carers.

About PHA Europe

PHA Europe was founded in 2003 and is the umbrella organization for national associations of patients living with pulmonary hypertension in Europe. It is registered in Vienna, Austria, as an international non-profit organization. Membership currently includes 33 patient associations from 29 countries. PHA Europe works together with its members to enhance awareness of pulmonary hypertension across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments, and encourage research for new medicines and therapies.

About PHA US

Founded in 1991 by patients, for patients, the Pulmonary Hypertension Association (PHA) is the oldest and largest nonprofit patient association in the world dedicated to the pulmonary hypertension community. Pulmonary hypertension (PH) is a rare, chronic and life-threatening disease of the lungs for which no cure currently exists. Our mission is to extend and improve the lives of those affected by PH. To achieve our mission, PHA engages people with PH and their families, caregivers, healthcare providers and researchers worldwide who work together to advocate for the PH community, provide support to patients, caregivers and families, offer up-to-date education and information on PH, improve quality patient care and fund and promote research.

To find your local patient association for further information, advice and to speak to other people affected by PH in your country, please click here for the full list of patient associations around the world.