This website has been developed by PHA Europe and PHA US to provide easy access to a library of existing high quality PAH resources developed by patient groups for anyone who has been diagnosed with PAH as well as their families and carers.
The development of the website has been supported by an educational grant provided by Actelion Pharmaceuticals Ltd.
About PHA Europe
PHA Europe was founded in 2003 and is the umbrella organization for national associations of patients living with pulmonary hypertension in Europe. It is registered in Vienna, Austria, as an international non-profit organization. Membership currently includes 33 patient associations from 29 countries. PHA Europe works together with its members to enhance awareness of pulmonary hypertension across Europe, promote optimal standards of care for people living with the disease, ensure the availability of all approved treatments, and encourage research for new medicines and therapies.
About PHA US
The Pulmonary Hypertension Association (PHA) is a non-profit organization of patients, family members and medical professionals founded by four affected women in 1990 to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, research, advocacy and awareness. The U.S.-based organization now serves over 13,000 members and supporters through their Maryland-based headquarters, chapters in New York, Chicago, San Francisco and Houston, and more than 245 support groups nation-wide, and strives to end the isolation of the disease and involve constituents in everything the association does. Additionally, PHA is now the accrediting body for PH medical centers in the U.S. and produces a quarterly medical journal distributed to over 50,000 physicians around the world.
To find your local patient association for further information, advice and to speak to other people affected by PH in your country, please click here for the full list of patient associations around the world.