Index of Resources

Index of Resources

We hope you have found the information on this website helpful. For more information on any of these topics from patient organizations across the world, please search the following resources using the drop down menus below or by typing a keyword into the search bar.


When searching by category, try to not be too specific. Leaving some search categories as ‘ALL’ will allow you to see more resources available.

Make sure that keywords are spelt correctly to ensure that the search returns what you are looking for.

Translation permission request

If the resource you require is not available in your language and you wish to translate it, please click on the 'translation permission request' button. This will redirect you to a form which you can fill out with your details and a message to the patient organization responsible for the resource you are interested in. Please note, translation costs are not covered by PHA Europe or PHA US.

Search the index